I'm scheduled for my next visit to see my hematology doctor's in April, so I am going to request some joint X-rays, because it feels like I have a joint spur as it makes a nasty crunching sound every time I extend the joint. That's a sign of joint damage and other possible things going on when you hear that corn flake crunch in the joint. The sound eeks my wife out, she cringes every time she hears it. But that's the glory of getting older and having severe hemophilia, luckily for me, it's not going to get better... In the picture is my worst joint from having severe hemophilia. The left knee is normal, but the right knee, my target joint, is disfigured, swollen always and makes the same crunch sound as my ankle. This is many years of internal joint bleeding, pain, and trying to be a normal kid like the others. I don't regret a mile I've traveled, but there are some things I wish I could have prevented in my teens to save me sleepless nights of tossing and turning in pain today. Sure I may have kicked HCV in the rear end and sent that dragon hurdling off into another solar system, but the battle for me is daily regardless of liver issues or not. The bruising is normal as well, just comes with the territory.That is my thumb from a deep tissue bruise, no idea how this happened. Just woke up with it yesterday morning. I could have lifted something, or who knows what. YAY HEMOPHILIA!
But aside from hemophilia related complications, I am feeling fantastical! Treatment is a breeze, and my tolerance of the new medications have finally kicked in. To be frank, I feel deep down, it's a done deal with this liver thing, and I'm cured. I just have to get through 4 and a half more months of treatment to get to the finish line. God is Good, all the time, even in my pain and suffering, His righteousness transcends all afflictions, viruses or disease.
God is incredible man! God has shown much to me through you man and I'm so thankful for that. Keep on being a light brother. God Bless.
ReplyDeleteblessing to you guys! love your transparency!
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