Conversations With A Survivor

Join me on July 22nd, 1PM EST live on ‪#‎Periscope‬, as I tackle some of your questions in real time about living with ‪#‎Hemophilia‬, ‪#‎HIV‬ and ‪#‎HepatitisC‬. Periscope is a mobile app, and is totally free to download, no ads or quirky gimmicks. Be sure to add @istrive2thrive as a follower so you'll get a notification that I'm live! Like, follow and help me share this awareness and advocacy event. 

One Year Ago Today, A Reflection of Life

I officially obtained my one year "post liver treatment" lab results early this morning, marking my official one year anniversary of ending treatment on Sovaldi and Ribavirin. I ended treatment on July 7th, 2014. After one year of completing the toxic regimen, the virus remains "Undetected," which means the my Hepatitis C is 100% medically, officially and without question gone for good.

It's a little overwhelming to know that I don't have to face one of my dreaded fears of liver transplant, ESLD (end stage liver disease) or cirrhosis. I always projected my life going downhill in my late 30's based on how many years I actually had Hepatitis C and the estimated pattern of how the virus was attacking my liver, which was pretty regular. But now, God has gave me a new sense of normal, I'm cured. I don't take this cure for granted, and I walk each day with a new fresh perspective, and certainly with a sense of humility for the extended years added.

I remember a deep conversation I had with my wife before we exchanged vows, and in that late night discussion, I told Alexandra some things she should be prepared for concerning my health, age and overall well being. I recall that night being tearful, sorrowful and painful. But true love conquers all barriers that life hurls at us. Thankfully, she stuck with me, and now, the cure has happened. All those dark disturbing things we talked about won't happen the way I envisioned my life to progress. Even though it was my job to inform Alexandra the consequences, she loved me regardless, despite the difficulties and trying times, that's the power of "real love."

Quotes from Joseph Burke

When I first met my wife in 2008, my mind was so fixated on the "what if's" and the "could be's" instead of what God can truly do with a little patience. That was the life lesson I was taught by the Big Man upstairs, patience and forbearance. I treated once in 2006 for 24 weeks on Ribavirin and Interferon injections, to ultimately relapse 3 weeks after treatment ended. I had very little expectation going into this new treatment on Sovaldi, but despite my fears, it worked! No more fixations and daydreaming about my life spiraling out of control as my liver fails. It's pretty overwhelming, even as I write this, as the tears of rejoicing just flow.

I recall my wife telling me often, that she was praying for my cure. She frequently reminded me in church and home that her one main prayer was for the cure to happen. Above all else, she wanted her husband around, and the moment that prayer was answered, and God showed up, was mind blowing.

I'm fortunate, lucky and persevered through the trying times that us hemophiliacs faced in the 1980's and 1990's. It wasn't easy being a bleeder with HIV and Hepatitis C in those days. The stereotypes imprinted from the negative press are still very relevant today, but it's my job through this blog and "I Strive 2 Thrive" to educate the masses, and offer hope to those who suffer with my illnesses. It's enough to have hemophilia alone, but combine HIV, chronic pain and my now my cure of Hepatitis C, I've become empowered to educate those who still have those uneducated beliefs about any of the illnesses I endure daily.

This win may be of science, and the pharmaceutical company Gilead for manufacturing Sovaldi, but the real win here is one for God. He allowed me endure just a little longer, become married, and through that I learned patience and a deeper understanding of who I am, and whose I am. I count my blessings daily, and don't take each breath for granted. This cure has empowered me to help and enrich others lives, and do it with love that only comes from God. Today marks two anniversaries in my life, my parent's 37th wedding anniversary and the one year anniversary of my cure. Funny how God does that right, almost like a wink and pat on the back as I'm reminded how truly awesome He is.

A Conversation with A Modern Day Miracle

After several years, I finally get the chance to speak at my church and before my brothers on my testimony and how God has radically changed my life. This 18 minute interview gives an in depth perspective on the life I've lived, and offers a ray of hope for those who struggle with Hemophilia, HIV or Hepatitis C today. This interview marks the 11 month post-treatment point since my Sovaldi and Ribavirin liver therapy from last year. July 7th, 2015 will be one full year since I completed liver treatment, and even though I don't know those results yet, I am confident based on my 6 month undetected status that God's got this once and for all. 
It is my prayer that those who watch this are encouraged, enlightened and filled with hope for their own paths and destinies. God has so richly blessed me to continue doing His good work through my church and community, and this interview is just one small part of that initiative. "For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11 (NIV) 
Too Blessed 2 Be Stressed, Joe

A Video Testimony

Joseph is not only a survivor of the horrors during the dark days of the pharmaceutical industry, but a living miracle by medical standards. Born with severe Hemophilia Type A (less than 1% clotting factor in the bloodstream), the very product used to treat the blood disease (Anti-Hemophiliac Factor VIII) to many became a death sentence in the late 80’s and early 90’s. Plasma pools were riddled with live HIV and Hepatitis C strains from skid-row and prison locations. As a result, Joseph became co-infected (both HIV & HCV) around age 3, trailing a life of extended hospital stays, appointments and never-ending infusions sessions. Today, less than 1.8% of the 12,000 hemophiliacs in the United States are alive. Joseph is one of those fortunate warriors to carry the torch and be that voice for those who no are no longer with us. In 2014, Joseph underwent extensive liver treatment on the new drug called Sovaldi, and within four weeks of a six month therapy, his Hepatitis C virus was no more. Today, Joseph shares his life, struggles and realities of living with debilitating complications resulting from hemophilia related injuries, and maintains a healthy lifestyle with a well controlled HIV anti-viral suppression regimen. He is unique, unfiltered and a survivor; and it's for that reason God is using his life in a major way.

10 Health Benefits of Matcha Tea

Matcha tea is a super-powered tea that can be consumed many different ways. There are so many reasons why I love green matcha tea, and it wasn't until recently I found out it's true hidden power, and the positive impact it can have on the body, especially for those living with HIV and/or Hepatitis C. If you have been diagnosed with HIV, HCV or cancer, than consider this health choice option for your day to day.

Matcha is a type of green tea that is grown only in Japan, and has been consumed by locals for hundreds, possibly thousands of years. By stone grinding down the leaves to a very fine powder, the true power of this tea is unlocked. Here are my top 10 reasons why green matcha can radically help your overall health and vitality.

1. HIGH ANTIOXIDANTS
At some point in this modern world, we've all heard this word one time or another; "antioxidant." But what is it, and why should we be aware of it? Imagine this, we're at a baseball game, and the first baseman is our antioxidant. He's our first line of defense to our immune system, and keeps all the players on the field in check. So let's back up, what is it, and what do antioxidants do for us? Exposure to UV radiation over time breaks down our skin's cellular structure, so the health geeks, like yours truly, seek those vital antioxidants to restore and replenish ours cells. Items like raw fruits and veggies, greens and yes, my favorite, dark chocolate. Matcha is loaded in antioxidants, in fact 5 times as much as the most potent super food, the avocado as tested by the ORAC (oxygen radical absorbance capacity) method for blood-oxygen absorption.

2. LOADED WITH CATECHINS & EGCG
Green tea contains about 30% catechins, whereas black tea contains only 4% of theaflavins. Both are powerful antioxidants. But matcha tea has far more in quantity, which explains why it is associated with more health benefits. The most significant phytochemical in green tea is a polyphenol called epigallocatechin-3-gallate, or EGCG for short. EGCG promotes brain health, is an anti-cancer fighting agent, increases heart health and promotes weight loss! EGCG naturally increases metabolism safely, burns fat and more importantly, reduces fat storage of cells. There are so many articles on the web about catechins and EGCG benefits, so do the research for yourself and prepare to be blown away at just how powerful these enzymes are for the body.

3. FIGHTS HIV
Speaking of EGCG, The green tea flavonoid has been linked to naturally fighting HIV as true anti-viral. matcha has been proposed to have an anti–HIV-1 effect by preventing the binding of HIV-1 glycoprotein (gp) 120 to the CD4 molecule on T cells. Plants rich in flavonoids such as elderberry, matcha and cinnamon appear to block HIV-1 and can thus help in the treatment of HIV/AIDS. So if you've been diagnosed with HIV, talk with your doctor about matcha, and consider drinking it even while on your HAART anti-viral regimens as an extra line of defense for your immune system.

4. A SENSE OF CALM
For centuries, Buddhist monks have consumed herbal teas like matcha to promote a state of calm while meditating, yet remaining alert; without the "downer" effect of a pharmaceutically induced calm. Research has shown that this is directly due to the amino acid L-Theanine. L-Theanine promotes the production of alpha waves in the brain, which induces the calmness, while remaining focused, alert and attentive.

5. INCREASED LIVER HEALTH WITH HEPATITIS C
For those of us with liver disease, Cirrhosis, Hepatitis C, or fatty liver, there is hope for us yet! New studies have shown that green tea has antifibrotic effects! Which means it can reverse and heal certain grades of liver fibrosis, improve portal vein function and dissipate the collagen bands around your liver that form during fibrosis. Did I mention it purifies the blood as well? Holy smokes, that's some potent matcha! For more information on matcha and liver disease, click here.

6. FIGHTS CANCER
When scientists injected matcha extracts in tumors, the results were profound. The EGCG extracts we were discussing earlier actually shrunk cancerous tumors in the body. The catechins in green tea are able to break the molecular link between infection and cancer. The EGCG's are also active in breast cancer, prostate cancer, skin and lung cancer and cancer of the oral cavity and oesophagus, tumors in the liver, pancreas, intestines, stomach, bladder and brains. The growth of tumors is slowed down. The EGCG's in matcha stimulate cancer cells to self-destruct. For more information on anti-cancer properties of matcha, click here.

7. INCREASED MEMORY AND CONCENTRATION
The introduction of L-Theanine into the brain causes the production of dopamine and serotonin. These two chemicals alone have been shown to enhance mood, increase memory, aid in better concentration and just overall increased motor skill function. I'm pretty sure that's something that we all could probably benefit from, right?

8. FIGHTS BAD CHOLESTEROL 
I'm from a family where elevated cholesterol levels have to be monitored and is something inherited. Even with my HIV regimens, I often have elevated levels of cholesterol, which I have to monitor with proper food intake and nutrition. That's where matcha comes in, Research in various cultural ethnicity groups have shown that men who consume regular 2-4 cups a day of matcha had a lower LDL (bad cholesterol) and an increase HDL (good cholesterol). Matcha even reduces and normalizes blood sugar levels in patients with diabetes. WOW!

9. DETOX & IMMUNE BOOSTING
Before matcha is harvested, during the last month of growth, the plants are covered to block out the sunlight, which causes the plants to produce a tremendous amount of chlorophyll. It's been known for a while that chlorophyll is a natural blood detoxing agent and immune system booster. That's why trends like juicing "green drinks" loaded in chlorophyll are so widely popular today. Chlorophyll is stored solar energy. But the camellia sinensis, the plant grown before matcha is made, produces 10 times more chlorophyll than any other plant. Think of it like this, one cup of matcha is equal to 10 cups of traditional green tea.

10. IT JUST TASTES GOOD
I personally consume matcha two ways. I buy the powder locally from a health food store, or sometimes online from Amazon.com. I like the brand "DoMatcha," but you may find your own brand through trial and error. I prefer a typical warm tea, two teaspoons of matcha powder with a 1/4 cup of soy milk and warm water. I also enjoy Starbcuks own Teavana line of green matcha. My favorite drink is a Venti Iced Green Matcha Tea with Soy and light ice. It's so good! I call it the HULK drink, because that's exactly what it is, a powerhouse to good health and strength.

BONUS
Matcha consumed with warm water and just the powder has 0 calories and is loaded in dietary fiber! So... what are you waiting for?