For over 30 years, the Hemophilia community has recognized March unofficially as "Bleeding Disorders Awareness Month." The name originally came from a 1986 Proclamation by President Ronald Regan, the impact and message as always been about bleeding disorders in general, and embracing the history from which the hemophilia community originates.
We've come a long way since the 70's when hemophilia treatments first began being used mainstream. The community has endured and suffered it's fair share of heartache and loss. Treatments today are improved vastly, and breakthrough treatments are in development as we speak to help the hemophilia community with our bleeding disorders.
Over the next 31 days, let's pause to reflect, taking a glimpse back, while straining forward and embracing new horizons in bleeding disorders. Reconnect with family members, share old photos and post on social to support someone you love with a bleeding disorder.
The follow list of things to do comes from the Hemophilia Federation of America.
- Change your Facebook and Twitter profile pictures to show your support.
- Wear your bleeding disorder shirts or wristbands and share your photos on our wall to show support.
- Invite family and friends over to watch Bad Blood: A Cautionary Tale in an effort to educate about our community's history.
- Explore the interactive historical timeline.
- Print out educational cards for your kids to help raise awareness about hemophilia and von Willebrand Disease among their classmates.
- Give a presentation to your child's school or to your colleagues about bleeding disorders.
- Support your local Hemophilia Chapter, and help with fundraisers to promote bleeding disorder awareness.
